I kept my diagnosis as gene positive for Huntington’s disease a secret for over ten years because I was afraid of how people might react. I thought I would lose my job, I didn’t think people would want to be friends with me any more. I was terrified of ending up alone and unloved for the rest of my life. I didn’t see my value as a human being if I was going to end up suffering from this disease and becoming a burden to those I loved.
I completely lost my self confidence and I fell into a deep depression. I struggled to function in my daily life. Everything from getting out of bed in the morning, to doing the laundry or simply answering the phone, was too hard.
Published on Beacon for Rare Diseases
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