Adoption, Family Planning, Featured, Huntington Disease, Infertility
I was recently interview for story which has been featured on the rare disease website – Know Rare. You can read the article HERE
Article, Huntington Disease
When you spend years of your life hiding something (that Huntington’s was in my family) that feeling of shame sticks with you. Even after I made the decision to stop living in secrecy it was still there, accompanied by a huge amount of fear. So every opportunity I...
Article, Huntington Disease, Positive Living
I have a rare disease, well not quite yet, but I live with Huntington’s every day. I am gene positive for Huntington’s which means I will get the disease one day I just don’t know when the symptoms will start. That can make it hard to fit in. I have this bad thing...
Appearance, Family Planning, Huntington Disease, Positive Living
I have been invited to Boston to speak at the Wave Life Sciences offices next month. I will be representing the Huntington’s community and speaking what it is like to live with Huntington’s in the family. Wave Life Sciences is a biotechnology company...
Article, Huntington Disease
Amazingly my dad just turned 80 this year. He has late onset Huntington’s. His symptoms didn’t start until he was in his late fifties, although it is only in hindsight that I can say this. I didn’t know what was going on at the time because HD was kept a secret in my...
