Appearance, Family Planning, Huntington Disease, Positive Living
I have been invited to Boston to speak at the Wave Life Sciences offices next month. I will be representing the Huntington’s community and speaking what it is like to live with Huntington’s in the family. Wave Life Sciences is a biotechnology company...
Article, Huntington Disease
Amazingly my dad just turned 80 this year. He has late onset Huntington’s. His symptoms didn’t start until he was in his late fifties, although it is only in hindsight that I can say this. I didn’t know what was going on at the time because HD was kept a secret in my...
Article, Huntington Disease
I kept my diagnosis as gene positive for Huntington’s disease a secret for over ten years because I was afraid of how people might react. I thought I would lose my job, I didn’t think people would want to be friends with me any more. I was terrified of ending up...
