November 2023: Guest Speaker at the Huntington Society of Canada National Conference

Appearance, Huntington Disease, Infertility, Mental Health

The Huntington Society of Canada is having their first national conference in five years. I am so excited to be there. I will be speaking on a panel with other community members about raising awareness for Huntington’s Disease. I will also have a table with...

Want to Share Your Rare Disease Story?

Happening

You don’t have to be a writer to be in my next book – you just have to have a rare disease story to tell. Everyone involved will go through story development and coaching as part of the writer development program. You can find out more this opportunity by...

Support for Huntington’s Disease Heroes Book

Adoption, Books Reviews, Family Planning, Happening, Huntington Disease, Infertility, Mental Health, Positive Living

We have received so many beautiful endorsements for my new collaborative book – Huntington’s Disease Heroes. I am truly touched by how the Huntington’s community has come together to support the book. These moving stories of real people affected by...

November 2023: Keynote Speaker – Huntington Study Group’s Annual Meeting

Appearance, Family Planning, Huntington Disease, Mental Health, Positive Living

I am so excited for this! I will speaking at the Huntington Study Groups annual meeting in Arizona this November. It is a three day event. I will have a booth with copies of my latest book Huntington’s Disease Heroes. You can catch me speaking on Saturday...

Managing the In Between Years on the I Am Not My Pain Podcast

Family Planning, Huntington Disease, Infertility, Podcast, Positive Living

Deciding to go through genetic testing for Huntington’s disease, managing the emotional aftermath of genetic testing and talking to kids about Huntington’s – these are just some of the important subjects Melissa and I spoke about on her podcast. She is such a...