At a time when people didn’t want to talk to me about the scary feelings I had about Huntington’s disease the @sickboypodcast was there for me. They were having the conversations I longed to have with people in my life. They were taking about death and illness and joking along the way. Their podcast came along at a pivotal moment in my life. I wanted to be more open about my gene positive status for HD and they were examples of how that was possible. Five years later I am so excited that I was asked to speak about Huntington’s Disease on the Sickboy podcast. You can catch the interview HERE.
Know Rare Interview with Erin Paterson
I was recently interview for story which has been featured on the rare disease website - Know Rare. You can read the...
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