June 2023: HD Reach Book Club Appearance

Appearance, Books Reviews, Family Planning, Huntington Disease, Infertility, Mental Health, Positive Living

I am so excited to be attending the HD book club meeting next month hosted by HD Reach. Members of the community are reading the first ten chapters of Huntington’s Disease Heroes and will be discussing the stories that night. I will be at attending virtually....

June 2023: Guest Speaker at the Huntington’s Disease Alliance Family Voices Webinar

Adoption, Appearance, Family Planning, Huntington Disease, Infertility, Mental Health

I will be speaking at an virtual event hosted by the Huntington’s Disease Alliance on Thursday June 22, 2023 at 2pm EST I will be sharing my experiences living with HD in the family and the release of my new collaborative book called Huntington’s Disease...

March 2023: Guest Speaker at the HDYO Congress in Glasgow Scotland

Appearance

I am beyond excited to be speaking at the upcoming HDYO Congress in Glasgow Scotland. I will be on a panel speaking about getting involved in the Huntington’s community and some of the advocacy work I have been doing. I can’t wait to meet you there! The...

October 2022: HD Education Day with Erin – Presented by HDSA

Appearance

I will be speaking about going through genetic testing & how my gene positive diagnosis impacted my life, including my decision to have children. Presented by Huntington’s Disease Society of America Saturday October 29, 2022 10:30 – 2:00 Buffalo...

March 2022: Help 4 HD Virtual Education Event

Adoption, Appearance, Family Planning, Huntington Disease, Infertility, Mental Health, Positive Living

I will be answering 20 questions about Huntington’s disease at a virtual education event hosted by Help4HD. You can catch me on Saturday March 12 at 1:15 EST. Tickets to the event are free and can be found HERE.

March 2022: Guest Speaker at HDYO Virtual Congress

Adoption, Appearance, Family Planning, Huntington Disease, Infertility, Mental Health, Positive Living

I am excited to be speaking on the Testing Positive panel at HDYO’s International Young Adults Congress in March.  I will be sharing my experiences with going through genetic testing and speaking about how my gene positive diagnosis impacted my decision to have...