Music Transports Me Back to Those Dark Diagnosis Days

Article, Family Planning, Huntington Disease, Positive Living

My husband and I were driving along a country road with no destination in mind. We needed to escape the city and our lives for the day. We drove past fields of tall, golden grass waving in the breeze, and turned down random roads that we happened upon. We cracked the...

The Special Moments I Keep Noticing During the COVID-19 Pandemic

Article, Positive Living

I saw it when I went for a walk with my daughter. It was a cool spring afternoon, a rare day when the sun was actually shining. She was zipping along the sidewalk on her scooter, 10 feet ahead of me. Her pink bike helmet bobbing up and down as she propelled herself...

My Genetic Status Complicated Having a Baby

Adoption, Article, Family Planning, Huntington Disease, Infertility

As I walked down the street to get my afternoon coffee one day, it appeared as if everything were normal. Unfortunately, everything was not. I crossed the same streets I normally do, walked past familiar neighborhood shops, and waved to fellow business owners. I...

Saying ‘Yes, Yes!’ to the Power of Words

Article, Huntington Disease, Positive Living

I wasn’t expecting to be brought to tears when I heard motivational speaker Lisa Nichols address a crowd at the Archangel Summit in Toronto last year. Nichols strode onto the catwalk-style stage wearing a long, embroidered dress, her braided hair cascading down...

I Have Gained Many Things Because of Huntington’s

Article, Huntington Disease, Positive Living

I walked through the door of my condo at 9 p.m., kicked off my running shoes, and dropped my gym bag on the floor. Crap, he’s not back yet, I thought to myself. I had just returned from my fifth run of the week. I was beating down my body and my mind with exercise. It...

I’ve Lost Many Things Because of Huntington’s

Article, Family Planning, Huntington Disease, Positive Living

During the holidays, the small, wood-paneled dining room was full to bursting with my family members. Ten or more people squeezed around a table meant for six, with just an inch of elbowroom between us. My dad sat at the head of the table, which was covered by a cream...