Want to Share Your Rare Disease Story?

Happening

You don’t have to be a writer to be in my next book – you just have to have a rare disease story to tell. Everyone involved will go through story development and coaching as part of the writer development program. You can find out more this opportunity by...

Support for Huntington’s Disease Heroes Book

Adoption, Books Reviews, Family Planning, Happening, Huntington Disease, Infertility, Mental Health, Positive Living

We have received so many beautiful endorsements for my new collaborative book – Huntington’s Disease Heroes. I am truly touched by how the Huntington’s community has come together to support the book. These moving stories of real people affected by...

Collaborative Books – We Want to Hear from You!

Happening, Huntington Disease, Infertility, Mental Health, Positive Living

Did you know I own a publishing company called Lemonade Press? We are currently accepting applications for custom collaborative books for publication in 2024. If you are a member of an under represented medical or rare disease community and have an interest in...

Huntington’s Disease Heroes Press Release

Family Planning, Happening, Huntington Disease, Mental Health, Positive Living

FOR IMMEDIATE RELEASE Rare Disease Community Comes Together to Release Book for Rare Disease Day, February 28  Sharing Stories from an Underrepresented Rare Disease Community   February 23, 2023 — Toronto, Ontario, Canada Huntington’s disease has been steeped in...

March 2023: Huntington’s Disease Heroes Book Available at HDYO Congress

Family Planning, Happening, Huntington Disease, Mental Health, Positive Living

As you may know my second book, Huntington’s Disease Heroes, was recently published. We will be having a booth at the upcoming HDYO Congress in Glasgow Scotland – March 17 – 19, 2023 Pop by the booth to say or pick up a copy of the book. Some of the...

Huntington’s Disease Heroes – An Anthology of Stories from YOU!

Adoption, Family Planning, Happening, Huntington Disease, Infertility, Mental Health

I have been working on an exciting new project! Last month I launched Lemonade Press and now we are working on our first anthology. Here is a little bit more about it. Are you a member of the Huntington’s disease community? Do you want to share YOUR story? After I was...