Article, Family Planning, Huntington Disease, Mental Health, Positive Living
These days as my father’s Huntington’s disease progresses and I take on more and more, I have learned how quickly being a caregiver can consume my life. Yes, he is still living two hours away and I don’t take care of his day-to-day needs, but I do everything else for...
Huntington Disease, Mental Health, Podcast, Positive Living
The support for my new collaborative book (Huntington’s Disease Heroes) has been amazing. I was so fortunate to be able to speak about it on an episode of We Have a Voice with host Kevin Jess. Listen Here
Family Planning, Huntington Disease, Mental Health, Podcast, Positive Living
My new book – Huntington’s Disease Heroes – was recently released and I am so grateful I had the opportunity to speak about it on Help4HD Live. I spoke with host Lauren Holder about how the book came about, the amazing people who shared their stories...
Family Planning, Happening, Huntington Disease, Mental Health, Positive Living
FOR IMMEDIATE RELEASE Rare Disease Community Comes Together to Release Book for Rare Disease Day, February 28 Sharing Stories from an Underrepresented Rare Disease Community February 23, 2023 — Toronto, Ontario, Canada Huntington’s disease has been steeped in...
Adoption, Family Planning, Huntington Disease, Infertility, Mental Health, Podcast, Positive Living
I was so happy to be interviewed on the Rarely Heard Podcast as a part of their “Talking in Tandem” series. I was interviewed about my experiences living with Huntington’s disease in the family and then for the second half of the episode Clare...
Featured, Huntington Disease
I curated this book of stories full of stories from the Huntington’s community. The book features stories from 25 people from 9 countries from a wide range of perspectives. From people who are gene positive, gene negative or untested. People who have had...
