Adoption, Family Planning, Featured, Huntington Disease, Infertility
I was recently interview for story which has been featured on the rare disease website – Know Rare. You can read the article HERE
Appearance, Huntington Disease, Infertility, Mental Health
The Huntington Society of Canada is having their first national conference in five years. I am so excited to be there. I will be speaking on a panel with other community members about raising awareness for Huntington’s Disease. I will also have a table with...
Adoption, Books Reviews, Family Planning, Happening, Huntington Disease, Infertility, Mental Health, Positive Living
We have received so many beautiful endorsements for my new collaborative book – Huntington’s Disease Heroes. I am truly touched by how the Huntington’s community has come together to support the book. These moving stories of real people affected by...
Family Planning, Huntington Disease, Infertility, Podcast, Positive Living
Deciding to go through genetic testing for Huntington’s disease, managing the emotional aftermath of genetic testing and talking to kids about Huntington’s – these are just some of the important subjects Melissa and I spoke about on her podcast. She is such a...
Huntington Disease, Infertility, Mental Health, Podcast
At a time when people didn’t want to talk to me about the scary feelings I had about Huntington’s disease the @sickboypodcast was there for me. They were having the conversations I longed to have with people in my life. They were taking about death and illness and...
Happening, Huntington Disease, Infertility, Mental Health, Positive Living
Did you know I own a publishing company called Lemonade Press? We are currently accepting applications for custom collaborative books for publication in 2024. If you are a member of an under represented medical or rare disease community and have an interest in...
