Huntington Disease, Infertility, Mental Health, Podcast
At a time when people didn’t want to talk to me about the scary feelings I had about Huntington’s disease the @sickboypodcast was there for me. They were having the conversations I longed to have with people in my life. They were taking about death and illness and...
Happening, Huntington Disease, Infertility, Mental Health, Positive Living
Did you know I own a publishing company called Lemonade Press? We are currently accepting applications for custom collaborative books for publication in 2024. If you are a member of an under represented medical or rare disease community and have an interest in...
Appearance, Books Reviews, Family Planning, Huntington Disease, Infertility, Mental Health, Positive Living
I am so excited to be attending the HD book club meeting next month hosted by HD Reach. Members of the community are reading the first ten chapters of Huntington’s Disease Heroes and will be discussing the stories that night. I will be at attending virtually....
Family Planning, Featured, Huntington Disease, Infertility, Mental Health, Positive Living
I was so delighted to be interview by fellow HD advocate and columnist for HungtingtonsDiseaseNews.com, Carlos Briceno. His story covers how the book Huntington’s Disease Heroes came about and why it is so important to keep sharing stories about the HD...
Adoption, Appearance, Family Planning, Huntington Disease, Infertility, Mental Health
I will be speaking at an virtual event hosted by the Huntington’s Disease Alliance on Thursday June 22, 2023 at 2pm EST I will be sharing my experiences living with HD in the family and the release of my new collaborative book called Huntington’s Disease...
Adoption, Family Planning, Huntington Disease, Infertility, Mental Health, Podcast, Positive Living
I was so happy to be interviewed on the Rarely Heard Podcast as a part of their “Talking in Tandem” series. I was interviewed about my experiences living with Huntington’s disease in the family and then for the second half of the episode Clare...
