Appearance, Huntington Disease, Infertility, Mental Health
The Huntington Society of Canada is having their first national conference in five years. I am so excited to be there. I will be speaking on a panel with other community members about raising awareness for Huntington’s Disease. I will also have a table with...
Adoption, Books Reviews, Family Planning, Happening, Huntington Disease, Infertility, Mental Health, Positive Living
We have received so many beautiful endorsements for my new collaborative book – Huntington’s Disease Heroes. I am truly touched by how the Huntington’s community has come together to support the book. These moving stories of real people affected by...
Appearance, Family Planning, Huntington Disease, Mental Health, Positive Living
I am so excited for this! I will speaking at the Huntington Study Groups annual meeting in Arizona this November. It is a three day event. I will have a booth with copies of my latest book Huntington’s Disease Heroes. You can catch me speaking on Saturday...
Huntington Disease, Infertility, Mental Health, Podcast
At a time when people didn’t want to talk to me about the scary feelings I had about Huntington’s disease the @sickboypodcast was there for me. They were having the conversations I longed to have with people in my life. They were taking about death and illness and...
Family Planning, Huntington Disease, Mental Health, Podcast
Caring for a loved one with Huntington’s Disease and carrying the gene myself can be a difficult road to travel. I was so grateful to have the opportunity to discuss this and many more important topics on The Podcast by Kevin MD. His podcasts are only 15 minutes...
Happening, Huntington Disease, Infertility, Mental Health, Positive Living
Did you know I own a publishing company called Lemonade Press? We are currently accepting applications for custom collaborative books for publication in 2024. If you are a member of an under represented medical or rare disease community and have an interest in...
