Family Planning, Huntington Disease, Mental Health, Podcast, Positive Living
My new book – Huntington’s Disease Heroes – was recently released and I am so grateful I had the opportunity to speak about it on Help4HD Live. I spoke with host Lauren Holder about how the book came about, the amazing people who shared their stories...
Family Planning, Happening, Huntington Disease, Mental Health, Positive Living
FOR IMMEDIATE RELEASE Rare Disease Community Comes Together to Release Book for Rare Disease Day, February 28 Sharing Stories from an Underrepresented Rare Disease Community February 23, 2023 — Toronto, Ontario, Canada Huntington’s disease has been steeped in...
Adoption, Family Planning, Huntington Disease, Infertility, Mental Health, Podcast, Positive Living
I was so happy to be interviewed on the Rarely Heard Podcast as a part of their “Talking in Tandem” series. I was interviewed about my experiences living with Huntington’s disease in the family and then for the second half of the episode Clare...
Family Planning, Happening, Huntington Disease, Mental Health, Positive Living
As you may know my second book, Huntington’s Disease Heroes, was recently published. We will be having a booth at the upcoming HDYO Congress in Glasgow Scotland – March 17 – 19, 2023 Pop by the booth to say or pick up a copy of the book. Some of the...
Article, Family Planning, Huntington Disease, Mental Health, Positive Living
“Do you feel the representation of Huntington’s disease (HD) is accurate on Virgin River?” A close friend of mine asked me today. As I sat in my living room, drinking my morning coffee and scrolling through Instagram, I thought about her question. Funnily enough I had...
Huntington Disease, Mental Health, Podcast, Positive Living
I was interviewed by Kevin Jess on We Have a Face TV about my upcoming book, Huntington’s Disease Heroes. Not only did we speak about some of the inspirational stories that are going to be in the book, we discussed how important it is for us to be able to share...
