Huntington Disease, Mental Health, Podcast, Positive Living
I was so pleased to be asked to tape an episode of the “I Don’t Know How You Do It” podcast along side these two outspoken rare disease advocates. Host, Jessica Fein, is a published author and she was kind enough to write the forward for my latest...
Huntington Disease, Infertility, Mental Health, Podcast, Positive Living
Amber and I met through LinkedIn. We hopped on a call to chat and I ended up taping an episode of her podcast, Your Migraine Story Matters. Amber is a passionate and hard working migraine advocate. We spoke about migraines, Huntington’s disease and finding...
Huntington Disease, Podcast
My daughter and I were on Help4HD Live to speak about her new book! She wrote a children’s picture book about Huntington’s disease and we were asked to be on the program to speak about the inspiration behind the book and read an excerpt. I am so proud of...
Family Planning, Huntington Disease, Infertility, Mental Health, Podcast, Positive Living
I was so delighted to have the in-depth conversation with Sylvain from the On One Condition Podcast. We covered an array of topics including how I found out Huntington’s disease ran in my family, going through genetic testing and how being gene positive for...
Family Planning, Huntington Disease, Infertility, Podcast, Positive Living
Deciding to go through genetic testing for Huntington’s disease, managing the emotional aftermath of genetic testing and talking to kids about Huntington’s – these are just some of the important subjects Melissa and I spoke about on her podcast. She is such a...
Huntington Disease, Infertility, Mental Health, Podcast
At a time when people didn’t want to talk to me about the scary feelings I had about Huntington’s disease the @sickboypodcast was there for me. They were having the conversations I longed to have with people in my life. They were taking about death and illness and...
