Article, Huntington Disease, Positive Living, Rare Disease
As you may know I own a publishing company called Lemonade Press – a publishing company focused on empowering people from underrepresented communities through storytelling. My latest book is called Positively Rare and I had the honour of writing about the book...
Huntington Disease, Mental Health, Podcast, Positive Living
I was so pleased to be asked to tape an episode of the “I Don’t Know How You Do It” podcast along side these two outspoken rare disease advocates. Host, Jessica Fein, is a published author and she was kind enough to write the forward for my latest...
Huntington Disease, Infertility, Mental Health, Podcast, Positive Living
Amber and I met through LinkedIn. We hopped on a call to chat and I ended up taping an episode of her podcast, Your Migraine Story Matters. Amber is a passionate and hard working migraine advocate. We spoke about migraines, Huntington’s disease and finding...
Family Planning, Huntington Disease, Infertility, Mental Health, Podcast, Positive Living
I was so delighted to have the in-depth conversation with Sylvain from the On One Condition Podcast. We covered an array of topics including how I found out Huntington’s disease ran in my family, going through genetic testing and how being gene positive for...
Article, Huntington Disease, Positive Living
I have a rare disease, well not quite yet, but I live with Huntington’s every day. I am gene positive for Huntington’s which means I will get the disease one day I just don’t know when the symptoms will start. That can make it hard to fit in. I have this bad thing...
Appearance, Family Planning, Huntington Disease, Positive Living
I have been invited to Boston to speak at the Wave Life Sciences offices next month. I will be representing the Huntington’s community and speaking what it is like to live with Huntington’s in the family. Wave Life Sciences is a biotechnology company...
