Article, Huntington Disease, Positive Living
I have a rare disease, well not quite yet, but I live with Huntington’s every day. I am gene positive for Huntington’s which means I will get the disease one day I just don’t know when the symptoms will start. That can make it hard to fit in. I have this bad thing...
Appearance, Family Planning, Huntington Disease, Positive Living
I have been invited to Boston to speak at the Wave Life Sciences offices next month. I will be representing the Huntington’s community and speaking what it is like to live with Huntington’s in the family. Wave Life Sciences is a biotechnology company...
Adoption, Books Reviews, Family Planning, Happening, Huntington Disease, Infertility, Mental Health, Positive Living
We have received so many beautiful endorsements for my new collaborative book – Huntington’s Disease Heroes. I am truly touched by how the Huntington’s community has come together to support the book. These moving stories of real people affected by...
Appearance, Family Planning, Huntington Disease, Mental Health, Positive Living
I am so excited for this! I will speaking at the Huntington Study Groups annual meeting in Arizona this November. It is a three day event. I will have a booth with copies of my latest book Huntington’s Disease Heroes. You can catch me speaking on Saturday...
Family Planning, Huntington Disease, Infertility, Podcast, Positive Living
Deciding to go through genetic testing for Huntington’s disease, managing the emotional aftermath of genetic testing and talking to kids about Huntington’s – these are just some of the important subjects Melissa and I spoke about on her podcast. She is such a...
Happening, Huntington Disease, Infertility, Mental Health, Positive Living
Did you know I own a publishing company called Lemonade Press? We are currently accepting applications for custom collaborative books for publication in 2024. If you are a member of an under represented medical or rare disease community and have an interest in...
