Article, Huntington Disease, Positive Living
I walked through the door of my condo at 9 p.m., kicked off my running shoes, and dropped my gym bag on the floor. Crap, he’s not back yet, I thought to myself. I had just returned from my fifth run of the week. I was beating down my body and my mind with exercise. It...
Article, Family Planning, Huntington Disease, Positive Living
During the holidays, the small, wood-paneled dining room was full to bursting with my family members. Ten or more people squeezed around a table meant for six, with just an inch of elbowroom between us. My dad sat at the head of the table, which was covered by a cream...
Article, Huntington Disease, Positive Living
I was out for coffee with a girlfriend one afternoon, shortly after I was diagnosed as gene positive for Huntington’s disease (HD). We were sitting in large brown leather chairs next to an electric fire place, our coffees on a small table between us. “I am worried...
Article, Family Planning, Huntington Disease, Infertility, Positive Living
I was an emotional mess when I first met Jeff Carroll at a Huntington’s disease conference. My recent gene-positive diagnosis was on my mind. I couldn’t talk about it without crying, and I believed that I would never be happy again. My husband and I were trying to...
Article, Huntington Disease, Positive Living
For a time following my diagnosis as gene-positive for Huntington’s disease (HD), I avoided elderly people. The mere glimpse of a wrinkled hand was a reminder that I was going to develop Huntington’s someday, and that was something I was trying to forget....
Huntington Disease, Podcast, Positive Living
To listen to my performance on the Grown Up’s Read Things They Wrote as Kids, episode 227, click HERE
