During the holidays, the small, wood-paneled dining room was full to bursting with my family members. Ten or more people squeezed around a table meant for six, with just an inch of elbowroom between us. My dad sat at the head of the table, which was covered by a cream linen cloth embroidered with gold thread and set with silver cutlery and the fancy china with a petite fleur pattern that was brought out only on special occasions…
Know Rare Interview with Erin Paterson
I was recently interview for story which has been featured on the rare disease website - Know Rare. You can read the...
Erin, today I read this blog post in Huntington’s disease digest and was overwhelmed with feeling about what it means to experience Huntington’s in a family that is close and connected and then suddenly broken. I just want to say that you are an awesome writer and I am enjoying every one of your posts. I hope you will stay with it and continue to help us connect with this rare and scary and awesome journey which all families with this disease must take together. Thank you so much for your words which help me feel and know what I often want to push away and not think about. All of my best to you… Nancy
Hello Nancy, Thank you so much for your kind words. I am glad that you felt a connection with that story. It is something I have felt for a long time but the first time I have written about it. Thank you for reading my columns. Your encouragement really means a lot to me. I hope you had a wonderful day today.
Erin