Publications & Appearances
Podcasts
Articles
Featured
Appearances
Happenings
Podcasts
Caring for a Loved One with Huntington’s Disease on The Podcast by Kevin MD
Caring for a loved one with Huntington's Disease and carrying the gene myself can be a difficult road to travel. I was so grateful to have the opportunity to discuss this and many more important topics on The Podcast by Kevin MD....
The Release of the book Huntington’s Disease Heroes on We Have a Voice Radio
The support for my new collaborative book (Huntington's Disease Heroes) has been amazing. I was so fortunate to be able to speak about it on an episode of We Have a Voice with host Kevin Jess. Listen Here
Talking about my New Book on Help4HD Live
My new book - Huntington's Disease Heroes - was recently released and I am so grateful I had the opportunity to speak about it on Help4HD Live. I spoke with host Lauren Holder about how the book came about, the amazing people who shared their stories in the book, and...
The Impacts of a Rare Disease on the Rarely Heard Podcast
I was so happy to be interviewed on the Rarely Heard Podcast as a part of their "Talking in Tandem" series. I was interviewed about my experiences living with Huntington's disease in the family and then for the second half of the episode Clare Gibbons from North York...
Huntington’s Disease Heroes Book on We Have a Face TV
I was interviewed by Kevin Jess on We Have a Face TV about my upcoming book, Huntington's Disease Heroes. Not only did we speak about some of the inspirational stories that are going to be in the book, we discussed how important it is for us to be able to share our...
Confronting Physician Bias on The Podcast by Kevin MD
Having the opportunity to share our experiences as a community is so important. I am grateful to Kevin Pho of The Podcast by Kevin MD for creating a valuable space to do that. I was on the show speaking about my experiences advocating for my Dad while he was in the...
Articles
The Heartbreaking Realities of Being a Caregiver with HD
These days as my father’s Huntington’s disease progresses and I take on more and more, I have learned how quickly being a caregiver can consume my life. Yes, he is still living two hours away and I don’t take care of his day-to-day needs, but I do everything else for...
Person with Huntington’s Disease on Popular Netflix Show
“Do you feel the representation of Huntington’s disease (HD) is accurate on Virgin River?” A close friend of mine asked me today. As I sat in my living room, drinking my morning coffee and scrolling through Instagram, I thought about her question. Funnily enough I had...
Advocating for a Sick Parent by Confronting Physician Bias
I spent the first three days sitting next to my dad’s hospital bed, watching his chest rise and fall slowly. He was asleep the majority of the time, fighting off something unknown. Anytime he moved, I jumped up from my chair and stood where he could see me just in...
The Day We Met Our Newborn Baby Through Adoption
We had been carrying an empty infant car seat around with us all morning. At the check-in counter, through security, at the magazine shop. It was on the floor next to us as we anxiously sat at our gate waiting for our flight to board. “Do you think people are...
What It’s Like to Be Infertile When You A Have Rare Disease
I slipped my cell phone into my back pocket and headed down to the cramped washroom in the basement for a little privacy. With shaking hands, I called into my voicemail and listened to the now familiar voice of the nurse: “Your pregnancy test came back negative. I am...
How We Wrote Our Adoption Profile Letter
One evening I sat down at my desk in my home office, turned on the orange lamp next to me, and prepared to write by its soft glow. Before placing my fingers on the keyboard, I took a deep breath and sat there imagining the expectant parents somewhere out there, trying...
As Featured In
You Are Not Alone: An Anthology of Perinatal Mental Health Stories
A story I wrote about infertility and post adoption depression was chosen to be a part of this wonderful anthology released by The Canadian Perinatal Mental Health Collaborative. If you would like to pick up a copy of You Are Not Alone: An Anthology of Perinatal...
My Story Accepted to Snapdragon: A Journal of Art and Healing
I am so proud that a story I wrote called "The Fall" was accepted to an online literary Journal. The piece appears in the Fall 2020, issue 6.3 themed Empty/Enough. This is a longer story, 1933 words, which meant I was able to go into more depth about the subject...
Not Cancelled: Canadian Kindness in the Face of Covid-19
I am thrilled to let you know that my story "Cupcakes and Crafts are Not Cancelled" was published the book Not Cancelled: Canadian Kindness in the Face of Covid-19. This anthology is full of inspiring stories collected from across Canada during the Covid -19 pandemic....
Our Story Featured in Huntington Society of Canada Newsletter
It took me a long time before I felt comfortable talking about Huntington Disease and infertility. In January I was interviewed by the Huntington Society of Canada. I am so pleased to tell you that the story of how we came to create our family appears in this months...
Family Planning and HD
I was happy to collaborate with the Huntington Society of Canada on this month's issue of "Strength & Knowledge". The fact sheet shares different ways of creating a family when you are at risk for Huntington Disease. Figuring out how to have children can be a...
Appearances
June 2023: HD Reach Book Club Appearance
I am so excited to be attending the HD book club meeting next month hosted by HD Reach. Members of the community are reading the first ten chapters of Huntington's Disease Heroes and will be discussing the stories that night. I will be at attending virtually. The...
June 2023: Guest Speaker at the Huntington’s Disease Alliance Family Voices Webinar
I will be speaking at an virtual event hosted by the Huntington's Disease Alliance on Thursday June 22, 2023 at 2pm EST I will be sharing my experiences living with HD in the family and the release of my new collaborative book called Huntington's Disease Heroes. You...
March 2023: Guest Speaker at the HDYO Congress in Glasgow Scotland
I am beyond excited to be speaking at the upcoming HDYO Congress in Glasgow Scotland. I will be on a panel speaking about getting involved in the Huntington's community and some of the advocacy work I have been doing. I can't wait to meet you there! The event takes...
October 2022: HD Education Day with Erin – Presented by HDSA
I will be speaking about going through genetic testing & how my gene positive diagnosis impacted my life, including my decision to have children. Presented by Huntington's Disease Society of America Saturday October 29, 2022 10:30 - 2:00 Buffalo Airport Hotel 4600...
March 2022: Help 4 HD Virtual Education Event
I will be answering 20 questions about Huntington's disease at a virtual education event hosted by Help4HD. You can catch me on Saturday March 12 at 1:15 EST. Tickets to the event are free and can be found HERE.
March 2022: Guest Speaker at HDYO Virtual Congress
I am excited to be speaking on the Testing Positive panel at HDYO's International Young Adults Congress in March. I will be sharing my experiences with going through genetic testing and speaking about how my gene positive diagnosis impacted my decision to have a...
Happenings
Huntington’s Disease Heroes – An Anthology of Stories from YOU!
I have been working on an exciting new project! Last month I launched Lemonade Press and now we are working on our first anthology. Here is a little bit more about it. Are you a member of the Huntington’s disease community? Do you want to share YOUR story? After I was...
BIG NEWS!!! Publishing Company Launch
BIG NEWS!!! Have you experienced the POWER of books? After I was diagnosed as gene positive for Huntington’s disease I fell into a deep depression. I could hardly get out of bed each morning. I was afraid to be anywhere alone because my mind would start racing and I’d...
Book Fairy Christmas Tour
Copies of All Good Things are being hidden by book fairies all across Canada for people to find. If you live in Thunder Bay, Calgary, Toronto, Saskatchewan or Montreal keep an eye out for free copies of my books.
BIG NEWS COMING SOON!
I have been working away on an amazing project that will empower and connect people experiencing hardships in their lives. I can't wait to share it with you. More details will be coming out next week!
Virtual Book Launch – PODCAST TOUR
You can catch me a bunch of podcasts as a part of my virtual book launch podcast tour. Listen now to Help 4 HD Live, We Have a Voice, Between the Lines and Embraced Simplified. Coming out soon, HD Insights, Kevin MD and Hot Mess to Awesomeness
Virtual Book Launch – BLOG TOUR
I am excited to be sharing excerpts of my book on these fabulous websites as a part of my virtual book launch. You can read the stories on Kevin MD, We Have a Face, The Mighty and Find A Cure Foundation. Since November is adoption awareness month I have also shared...
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