Publications & Appearances
Podcasts
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Appearances
Happenings
Podcasts
The Gift of Huntington’s Disease on the Hot Mess to Awesomeness Podcast
After testing gene positive for Huntington’s disease I told myself, I don’t want this to ruin my life. I want to find happiness again. I spoke to host Dionne Thomson on her podcast about how I found out a genetic disease ran in my family, the depression that followed...
Living a Meaningful Life on the Own Your Choices Own Your Life Podcast
I was so touched to have this conversation with Marsha on the Own Your Choices Own Your Life podcast. We briefly talked about the hardships I have been through but more of the conversation was focused on taking positive action in our lives despite the bad things that...
Rare Disease and the Impacts on Family Planning on the Path to Me Podcast
I was interview by Sara Glendenning on the Path to Me Podcast about what it's like living as a person who is gene positive for Huntington's disease (HD). We covered a lot of important topics including having kids when they are at risk for a genetic disease, going...
The Emotional Impact of Genetic Testing on The Podcast by Kevin MD
I spoke to host Kevin MD about the what it felt like in the months after testing gene positive diagnosis for Huntington's disease. We talked about the depression I went through and the things I did to cope with the news. Episodes of this podcast are a quick 15 minutes...
An Meaningful Conversation about Huntington’s on the HD Insights Podcast
Kevin Gregory host of the HD Insights Podcast got beyond the surface level and asked some really in-depth questions about living with Huntington's disease in the family. This is a podcast you don’t want to miss! I am so grateful for the opportunity to speak about such...
One Woman’s Relentless Search for Happiness on the Embrace Simplified Podcast
I spoke with host Kirsti Stubbs on the Embrace Simplified podcast about my journey to becoming a mom, the hardships of genetic testing, the pain of infertility and the reason why I wrote a book about it all. You can listen to it HERE.
Articles
How I’m Taking Back Control After Receiving a Rare Disease Diagnosis
I was sitting next to my husband in a sterile hospital room. I was so nervous; pools of sweat had already gathered beneath my arms. The genetic counselor, across the table from us, removed a piece of paper from the white envelope in her hand. She knew we were anxious...
Your Home Study Interview: 5 Tips To Help You Deal with Tricky Topics
It’s been years now but I still remember it, my husband and I sitting on an uncomfortable sofa across from our adoption practitioner at our first home-study interview. I was so nervous I had already begun to sweat. I had a secret and I was terrified of what would...
A Patient’s Perspective on Genetic Testing
I was sitting in a cold hospital room next to my husband, anxiously clutching his hand. The genetic counselor across from us withdrew a piece of paper from a white envelope and placed it on the table. She knew we were anxious to hear the results, so she got right to...
Erin Paterson: From HD to Happiness
I was sitting on the edge of the bed at 9am staring at the hardwood floor. It was almost time to start work, but I couldn’t gather the strength to move. I had no idea how I was going to make it through the next five minutes let alone an entire day. Lifting...
The Powerful Phrase I Wish I’d Known During My Infertility Journey
We were on our way to meet some friends at our favorite Italian restaurant downtown. A welcome distraction on a Friday night. I sat in the passenger seat of the car mindlessly staring out the window as we passed by the row of small businesses lining the street. The...
Erin’s Story – Featured on the U.K. Blog @youmeandhd
I was sitting on the edge of the bed at 9am staring at the hardwood floor. It was almost time to start work but I couldn't gather the strength to move. I had no idea how I was going to make it through the next five minutes let alone an entire day. Lifting myself from...
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Appearances
January 2022: Talking about Silver Linings at the Spoken Lives Speaker Series
I was honoured to be a guest speaker for the Spoken Lives speaker series last night. The theme of the evening was the silver linings of the pandemic. I was so happy to share the story behind my book, All Good Things, and how the pandemic provided the perfect...
December 2022: Worldwide Wish Hosted by Jimmy Pollard
I spoke to Jimmy Pollard and the Huntington's disease (HD) community on New Year's Eve about my Huntington's disease story. As a part of the evening participants were invited to make a wish for 2022. Here is my wish... "For anyone who is trying to create their family...
November 2021: Speaking About Family Planning at YPAHD DAY
I will be speaking on the family planning panel at YPAHD day again this year. My focus will be on adopting when you have Huntington's Disease in the family. I will give a brief overview of the adoption process and some tips for how to navigate tricky subjects, like...
October 2021: “That’s What She Said” Speaker Series
Have you ever had to make a difficult decision? A choice you knew in the moment could change your life forever? I will be speaking at the virtual That's What She Said speakers series hosted by Kick-ass Ladies. Friday December 10th, 7pm EST That’s What She Said is an...
October 2020: Guest Speaker at the HD Reach Virtual Support Group
I am pleased to share that I have been invited by HD Reach to speak at their next support group meting which will be hosted on Zoom. Thursday October 15th at 7:00pm EST
Sept 2020: Discussing Family Planning with YPAHD on Facebook Live
Last week I was happy to share my family planning journey with Young People Affected by Huntington's Disease (YPAHD) members on a Facebook live. We spoke about adopting when you are at risk or have tested gene positive for Huntington’s Disease. We answered these...
Happenings
Paperback Now Available – All Good Things: A Memoir
The trade paperback of All Good Things is now available on Amazon worldwide. Here is what people are saying about the book so far: A raw and honest account of Erin’s journey with testing for the genetic condition Huntington’s disease and wanting to have children....
All Good Things – Ebook Now Available
I am incredibly excited to let you know that the ebook version of, All Good Things, is now available on Amazon. I can’t even explain how amazing it feels that my book has finally been released after four years of hard work. Here is a little bit about the book: Erin...
Book Cover Reveal for All Good Things: A Memoir
I am excited to finally share the cover of my new book being released this fall. Here is a little bit about it… All Good Things: A Memoir About Genetic Testing, Infertility and One Woman’s Relentless Search for Happiness. Erin Paterson always expected she’d get...
From Where I Stand – A Monthly Column about Huntington’s Disease
I am so excited to announce that I will be writing a monthly column about my experiences with Huntington's Disease. The column is called "From Where I Stand" and will be published on Huntingtonsdiseasenews.com. My first post will be out by the end of the month.
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Erin.Paterson@LemonadeCommunity.com