Publications & Appearances
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Podcasts
A Discussion about Writing and the Release of my Memoir on the Between the Lines Podcast
If you could have written any book, which book would it be? What kind of music do you listen to while you write? What is your theory on writers block? I had the pleasure of answering these questions and more on the Between the Lines podcast with host Randy Lacey. We...
Talking About Having Kids on We Have a Voice Radio
I spoke to host Kevin Jess on We Have a Voice radio today about the complicated decision to have children when they are at risk for a genetic disease. You can check it out HERE.
Genetic Testing and Family Planning on Help4HD Live! Radio Show
I spoke to host Lauren Holder about genetic testing, family planning and my new book. You can listen to a replay of the show by clicking HERE.
A Patient’s Perspective on Genetic Testing on the KevinMD Podcast
Living life as gene positive for Huntington's disease and means I know what my future holds. I spoke to Kevin Pho about the impacts my diagnosis has on my life, my experience with the medical system, the ways I cope and so much more. You can hear the full interview on...
A Story About Genetic Testing and Infertility on the She Speaks Podcast
It was a struggle to find anything good in my life after being diagnosed as gene positive for Huntington's disease and dealing with infertility. Those were the hardest years of my life but I told myself two things - I was not going to let those things ruin my life and...
Grown Up’s Read Things They Wrote as Kids Podcast
To listen to my performance on the Grown Up's Read Things They Wrote as Kids, episode 227, click HERE
Articles
The Day I Summoned the Courage to Update My LinkedIn Profile
We were settling down in the living room to relax after putting our daughter to bed for the night. I was sitting on the leather sofa with my legs curled up next to me. The setting sun was shining through the front windows, casting a warm glow across a wall filled with...
Music Transports Me Back to Those Dark Diagnosis Days
My husband and I were driving along a country road with no destination in mind. We needed to escape the city and our lives for the day. We drove past fields of tall, golden grass waving in the breeze, and turned down random roads that we happened upon. We cracked the...
The Special Moments I Keep Noticing During the COVID-19 Pandemic
I saw it when I went for a walk with my daughter. It was a cool spring afternoon, a rare day when the sun was actually shining. She was zipping along the sidewalk on her scooter, 10 feet ahead of me. Her pink bike helmet bobbing up and down as she propelled herself...
My Genetic Status Complicated Having a Baby
As I walked down the street to get my afternoon coffee one day, it appeared as if everything were normal. Unfortunately, everything was not. I crossed the same streets I normally do, walked past familiar neighborhood shops, and waved to fellow business owners. I...
Saying ‘Yes, Yes!’ to the Power of Words
I wasn't expecting to be brought to tears when I heard motivational speaker Lisa Nichols address a crowd at the Archangel Summit in Toronto last year. Nichols strode onto the catwalk-style stage wearing a long, embroidered dress, her braided hair cascading down her...
I Have Gained Many Things Because of Huntington’s
I walked through the door of my condo at 9 p.m., kicked off my running shoes, and dropped my gym bag on the floor. Crap, he’s not back yet, I thought to myself. I had just returned from my fifth run of the week. I was beating down my body and my mind with exercise. It...
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