We didn’t have anything ready when we brought our baby home for the first time. Most people have nine months to prepare for their infant’s arrival; we had three days. We walked into our house as new parents, close to midnight, on a warm June evening. Everything had been so rushed there hadn’t even been a chance even been a chance to let our families know we were coming home. We slept that first night with the lights on, too nervous…
Know Rare Interview with Erin Paterson
I was recently interview for story which has been featured on the rare disease website - Know Rare. You can read the...
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