These days as my father’s Huntington’s disease progresses and I take on more and more, I have learned how quickly being a caregiver can consume my life. Yes, he is still living two hours away and I don’t take care of his day-to-day needs, but I do everything else for him from paying his bills to booking doctor appointments, following up on every detail, and making sure his supplies are stocked. When he became suddenly ill after a routine vaccination and ended up in hospital, I was at his bedside advocating…Read More
Know Rare Interview with Erin Paterson
I was recently interview for story which has been featured on the rare disease website - Know Rare. You can read the...
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