It’s been years now but I still remember it, my husband and I sitting on an uncomfortable sofa across from our adoption practitioner at our first home-study interview. I was so nervous I had already begun to sweat. I had a secret and I was terrified of what would happen once it came out. I had been diagnosed as gene positive for Huntington’s Disease (HD), a neurological condition that slowly kills nerve cells in the brain, causing cognitive impairment, uncontrolled movements and emotional issues. Being gene positive means I will get HD one day; I just don’t know when the symptoms will start. Read More…
Know Rare Interview with Erin Paterson
I was recently interview for story which has been featured on the rare disease website - Know Rare. You can read the...
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